Mi-Kyung Song

Mi-Kyung Song

PhD, RN, FAAN
Professor, tenured | Fuld Palliative Care Center Director, Edith Honeycutt Endowed Chair in Nursing

About

Mi-Kyung Song is a Professor, tenured, and received her PhD in Nursing (focused area in end-of-life and palliative care) from the University of Wisconsin-Madison, with minor in Biostatistics. Before joining Emory, she was a faculty member at the University of Pittsburgh and University of North Carolina at Chapel Hill.

Areas of Expertise

Palliative & End-of-Life Care
Intervention Research
Clinical Trials
Caregiver Well-Being

Publications

Articles in Peer-Reviewed Journals

 *+Paul, S., Choi, J., & Song, M.K. Analysis of data from a randomized clinical trial with mid-trial design changes: A simulation study. Clinical Trials.

*+Song, M.K., Paul, S., Pelkmans, J., & Ward, S.E. (in press). COVID-19 pandemic effects on stability of end-of-life preferences and congruence between patients on dialysis and their surrogates: A natural experimental study. Journal of Palliative Medicine.

*+Henry, C., Dunlop, A., Paul, S., Kelly, U.A., Christiansen-Lindquist, Chandler, R., Song, M.K. (in press). Relationships between strong black woman belief, coping behaviors, perceived social support, and psychological distress symptoms for Black mothers after stillbirth. Journal of Midwifery & Women’s Health.

*+Gustafson, C., Higgins, M., Woods, K., & Song, M.K. (in press). Place of death for young adults with chronic illness. Nursing Research.

*+Song, M.K., Paul, S., Happ, M., Lea, J., Pirkle Jr. J.M., & Turberville-Trujillo, L. (2023). Informal caregiving networks of older adults with dementia superimposed on multimorbidity: A social network analysis study. Innovation in Aging, 7(4), igad033. PMID: 37197444, PMCID: PMC10184695

+Henry, C.J., & Song, M.K. (2023). Use of Strong Black Woman construct in research: An integrative review. Advances in Nursing Science. PMID: 37192599

*Park, E.M., Deal, A.M., Heiling, H.M., Jung, A.m., Yopp, J.M., Bowers, S.M., Hanson, L.C., Song, M.K., Valle, C.G., Yi, B., Cassidy, A., Won, H., & Rosenstein, D.L. (2022). Families Addressing Cancer Together (FACT): Feasibility and acceptability of a web-based psychosocial intervention for parents with cancer. Supportive Care in Cancer, 30(10), 8301-8311. PMID: 35831719.

*Kovaleva, M.A., Higgins, M., Dietrich, M.S., Jennings, B.M., Song, M.K., Clevenger, C.K., Griffiths, P.C., & Hepburn, K. (2022). Characteristics associated with persons living with dementia neuropsychiatric symptoms and their caregivers’ distress and diminished wellbeing. Journal of the American Association of Nurse Practitioners, 34(4), 656-665. PMID: 35025838

*+Kim, H., Perkins, M., Pope, T., & Song, M.K. (2022). Medical decision-making practices for unrepresented residents in nursing homes. Journal of the American Medical Directors Association, 23(3), 488-492. PMID: 34297982

*+Park, E.M., Wang, M, Bowers, S.M., Muriel, A.C., Rauch, P.K., Edwards, T., Yi, S.M., Daniels, B., Hanson, L.C., Song, M.K. (2022). Adaptation and Psychometric Evaluation of the Parenting Concerns Questionnaire – Advanced Disease. American Journal of Hospice and Palliative Medicine. 39(8), 918-925. PMID: 34619978

*Park, E.M., Jensen, C.S., Song, M.K., Yopp, J.M., Deal, A.M., & Rosenstein, D.L. (2021). Talking with children about prognosis: The decisions and experiences of mothers with metastatic cancer. JCO Oncology Practice, 17(6), e840-e847. PMID: 33939473

+Metzger, M., Abdel-Rahman, E.M., Boykin, H., & Song, M.K. (2021). A narrative review of management strategies for common symptoms among advanced chronic kidney disease. Kidney International Reports, DOI:https://doi.org/10.1016/j.ekir.2021.01.038 (open access).

*+Henry, C., Higgins, M., & Song, M.K. (2021). Racial disparities in stillbirth risk factors among non-Hispanic Black women and non-Hispanic White women in the United States, MCN: the American Journal of Maternal/Child Nursing, 46(6), 352-359. PMID: 3465033

Corwin, E.J., Dunbar, S., Hertzberg, V., Holstad, M., Brewster, G., Wells, J., Song, M.K., & Jones, D., (2021). The metabolomic underpinning of symptom burden in patients with multiple chronic condition. Biological Research for Nursing, 23(2), 270-279. PMID: 32914645.

*Kovaleva, M.A., Jennings, B.M., Song, M.K., Clevenger, C.K., Griffiths, P.C., & Hepburn, K. (2021). Caregivers’ experience at an integrated primary care clinic. Research in Gerontological Nursing, 14(2), 69-78. PMID: 33492401.

+Gustafson, C., & Song, M.K. (2020). State of the science of palliative care in solid organ transplantation, Progress in Transplant, 30(4), 382-395. PMID: 32930042.

*Kovaleva, M.A., Higgins, M., Jennings, B.M., Song, M.K., Clevenger, C.K., Griffiths, P.C., & Hepburn, K. (2020). Patient and caregiver outcomes at an integrated memory care clinic, Geriatric Nursing, 41(6):761-768. PMID: 32513481.

*+McLaughlin, S.N., Herzberg, V., Piazza, A.J., & Song, M.K. (2020). Use of palliative care consultation services for infants with life-threatening conditions in a metropolitan hospital. Advances in Neonatal Care, 20(2), 136-141. PMID: 32224820

*Kim, S., Savage, T.A., Song, M.K., Vincent, C., Park, C.G., Ferrans, C.E., & Kavanaugh, K. (2019). Nurses’ roles and challenges in providing end-of-life care in neonatal intensive care units in South Korea. Applied Nursing Research. PMID: 31669082

*+Song, M.K., Ward, S.E., Hepburn, K., Paul, S., Kim, H., Shah, R.C., Morhardt, D.J., Medder, L., Lah, J., & Clevenger, C. (2019). Can persons with dementia meaningfully participate in an advance care planning discussion? A mixed-methods study of SPIRIT. Journal of Palliative Medicine. 22(11), 1410-1416. PMID: 31373868; PMCID: PMC6818478  

*+Song, M.K., Paul, S., Plantinga, L., Henry, C., & Turberville-Trujillo, L. (2019). Social networks of self-care and perceived treatment burden among patients on in-center hemodialysis. Kidney Medicine, 1(3), 79-82. PMID: 32734190

*+Kim, H, Park, E.M., Henry, C., Ward, S.E., & Song, M.K. (2019). Control conditions that are neither usual care nor no treatment in randomized trials of psychoeducational palliative care interventions: A systematic review. American Journal of Hospice and Palliative Medicine, 36(4), 339-347. PMID: 30343586; PMCID: PMC6444917

*+Jo, M., Song, M.K., Knafl, G., Van Riper, M., & Beeber, L. (2019). Family-clinician communication in the UC and its relationship to psychological distress among family members: A cross-sectional study. International Journal of Nursing Studies. PMID: 31005678

Seaman, J.B., Arnold, R.M., Buddadhumaruk, P., Shields, A., Palkoska, R.M., Felman, K., Newdick, W., SanPedro, R., Happ, M.B., Song, M.K., Kahn, J.M., Reynolds III, C.F., Angus, D., Landefeld, S., & White, D.B. (2018). Protocol and fidelity monitoring plan for a trial of an intervention to support surrogate decision makers in intensive care units. Annals of the American Thoracic Society, 15(9), 1083-1091. PMID: 30088971

*Tole, M., Song, M.K., Lin, F-C., & Hanson, L.C. (2018). Perceptions of family decision makers of nursing home residents with advanced dementia regarding the quality of communication around end-of-life care. Journal of the American Medical Directors Association, 19(10), 879-883. PMID: 30032597

+Song, M.K., Ward, S.E., Hepburn, K., Paul, S., Shah, R.C., & Morhardt, D.J. (2018). SPIRIT advance care planning intervention in early stage dementia: An NIH Stage I behavioral intervention development trial. Contemporary Clinical Trials, PMID: 29870867; PMCID: PMC6067971

*Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2018). Concordance between goals of care and treatment decisions for persons with dementia. Journal of Palliative Medicine, 21(10), 1442-1447, PMID: 29957095

*Park, E.M., Deal, A., Yopp, J., Edwards, T., Song, M.K., Nakamura, Z., & Rosenstein, D. (2018). Understanding health-related quality of life in adult women with metastatic cancer who have dependent children. Cancer, 124(12), 2629-2636. PMID: 29732554; PMCID: PMC5990432

+Kim, H., & Song, M.K. (2018). Medical decision making for unbefriended adults: State of the science. American Journal of Hospice and Palliative Medicine, 35(9), 1227-1234. PMID: 29390870

*+Kim, S., Kang, S., & Song, M.K. (2018). Intensity of care at the end of life among older adults in Korea. Journal of Palliative Care, 33(1), 47-52. PMID: 29361883

*+Song, M.K., Paul, S., Ward, S.E., Gilet, C.A., & Hladik, G.A. (2018). One-year linear trajectories of self-reported symptoms, physical functioning, cognitive functioning, emotional well-being, and spiritual well-being among patients on dialysis. American Journal of Kidney Diseases, 72(2), 198-204. PMID: 29395483; PMCID: PMC4294946

+Song, M.K., Unruh, M., Manatunga, A., Plantinga, L., Lea, J., Jhamb, M., Kshirsagar, A.V., & Ward. S.E. (2018). SPIRIT trial: A phase III pragmatic trial of an advance care planning intervention in ESRD, Contemporary Clinical Trials, 64, 188-194. PMID: 28993286; PMCID: PMC5742022

Head, B.A., Song, M.K., Wiencek, C., Nevidjon, B., Fraser, D., Mazanec, P. (2018). Palliative nursing summit-nurses leading changes and transforming care: Nursing’s role in communication and advance care planning. Journal of Hospice & Palliative Nursing, 20(1), 23-29. PMID: 30063610

Santacroce, S.J., Leeman, J., & Song, M.K. (2018). A training program for nurse scientists to promote intervention translation. Nursing Outlook, 66(2), 149-156. PMID: 29096878; PMCID: PMC5858986

*+Park, E.M., Tan, X.M., Stephenson, E.M., Deal, A.M., Rosenstein, D.L., Yopp, J.M., & Song, M.K. (2018). Psychometric analysis of the parenting concern questionnaire in women with metastatic cancer. Journal of Pain and Symptom Management, 55(2), 451-457. PMID: 28947143

+Jo, M., Yoo, Y-S., Knafl, G., Van Riper, M., Beeber, L., & Song, M.K. (2017). Family-clinician communication about end-of-life care in Korea. Journal of Hospice & Palliative Nursing, 19(6), 597-601. PMID: _____________

*+Jo, M., Song, M.K., Van Riper, M., Yoo, Y-S., Knafl, G., & Beeber, L. (2017). Translation and cultural adaptation of the quality of communication questionnaire for ICU family members in Korea. Heart & Lung, 46(6), 458-463. PMID: 28912058

+Song, M.K., & Happ, M.B. (2017). Generating high quality evidence in palliative and end-of-life care. Heart & Lung, 46(1), 1-2. PMID: 27989398

O’Hare, A.M., Song, M.K., Kurella Tamura, M., & Moss, A.H. (2017). Research priorities for palliative care for older patients with advanced chronic kidney disease. Journal of Palliative Medicine, 20(5), 453-60. PMID: 28463635

*Hanson, L.C., Zimmerman, S., Song, M.K., Lin, F-C., Rosemond, C., Carey, T., & Mitchell, S. (2017). Effect of the goals of care intervention for advanced dementia: A randomized clinical trial. JAMA-Internal Medicine, 177(1), 24-31. PMID: 27893884; PMCID: PMC5234328

*+Song, M.K., Metzger, M., & Ward, S.E. (2017). Process and impact of an advance care planning intervention evaluated by bereaved surrogate decision-makers of dialysis patients. Palliative Medicine, 31(3), 267-274. PMID: 27272317; PMCID: PMC Journal – In Process

*Alrawashdeh, M., Zomak, R., DeVito Dabbs, A., Dew, M.A., Song, M.K., & Pilewski, J. (2017). Pattern and predictors of readmission during the first year after lung transplantation. The Journal of Heart and Lung Transplantation, 17(5), 1325-1333. PMID: 27676226

*Hamilton, J.B., Worthy, V.C., Moore, A.D., Nakia, C.B., Steward, J., & Song, M.K. (2017). Messages of hope: Helping family members to overcome fears and fatalistic attitudes toward cancer. Journal of Cancer Education, 32(1), 190-197. PMID: 26314571

*Gilliam, R., Song, M.K., Zimmerman, S., Rosemond, C., Chrisholm, L., Lin, F-C., & Hanson, L.C. (2016). Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia. Clinical Trials, 13(6), 599-604. PMID: 27271683; PMCID: PMC5133163

+Song, M.K., DeVito Dabbs, A., & Ward, S.E. (2016). A SMART design to optimize interventions for patients and family caregiver outcomes. Nursing Outlook, 64(4), 299-305. PMID:27264454

*+Metzger, M. Song, M.K., Devane-Johnson, S. (2016). Perspectives of Patients with LVAD and surrogates on their experiences with an advance care planning intervention. Heart & Lung, 45(4), 305-10. PMID:27377333

*Park, E.M., Check, D.K., Song, M.K., Reeder-Hayers, K.E., Hanson, L.C., Yopp, J.M., Rosenstein, D.L., & Mayer, D.K. (2016). Parenting while living with advanced cancer: A qualitative study. Palliative Medicine, 31(3), 231-238. PMID: 27484674

Song, M.K. (2016). Quality of life of patients with advanced chronic kidney disease receiving conservative care without dialysis. Seminars in Dialysis, 29(2), 165-9. PMID: 26860542.

*+Metzger, M., Song, M.K., Ward, S.E., Chang, P., Hanson, L.C., & Lin, F-C. (2016). A randomized controlled pilot trial to improve advance care planning in LVAD patients and their surrogates. Heart & Lung, 45(3), 186-92. PMID:26948697

*+Song, M.K., Ward, S.E., Hanson, L.C., Metzger, M., & Kim, S. (2016). Determining consistency of surrogate decisions and end-of-life care received with patient goals-of-care preferences. Journal of Palliative Medicine, 19(6), 610-6. PMID: 26982909; PMCID: PMC 4904157

*Parvez, S., Abdel-Kader, K., Pankratz, S., Song, M.K., & Unruh, M. (2016). A survey of providers’ knowledge, attitudes, and practices surrounding conservative management for patients with advanced chronic kidney disease. Clinical Journal of American Society of Nephrology, 11(5), 812-820. PMID:27084874

*+Song, M.K., Ward, S.E., Lin, F-C, Hamilton, J.B., Hanson, L.C., Hladik, G.A., & Fine, J.P. (2016). Racial differences in outcomes of an advance care planning intervention for dialysis patients and their surrogates. Journal of Palliative Medicine, 19(2), 134-142. PMID:26840848; PMCID: PMC4753624

*DeVito Dabbs, A., Song, M.K., Mayers, B., Li, R., & Dew, M.A. (2016). A randomized controlled trial of a mobile health technology to promote self-management after lung transplantation. American Journal of Transplantation, 16(7), 2172-80. PMID: 26729617; PMCID: PMC4925283

*Park, E.M., Deal, A.M., Check, D.K., Hanson, L.C., Deal, A.M., Reeder-Hayes, K.E., Mayer, D.K., Yopp, J.M., Song, M.K., Muriel, A.C., & Rosenstein, D.L. (2016). Parenting concerns, quality of life, and psychological distress in parents with advanced cancer. Psycho-Oncology, 25(8), 942-8. PMID: 26282575

*+Song, M.K., Ward, S.E., Hladik, G. A., Bridgman, J.C., & Gilet, C.A. (2016). Depressive symptom severity, contributing factors, and self- management among chronic dialysis patients. Hemodialysis International, 20(2), 286-92. PMID: 25998623; PMCID: PMC4654980

*+Song, M.K., Ward, S.E., Fine, J.P., Hanson, L.C., Lin, F-C., Hladik, G.A., Hamilton, J.B., & Bridgman, J.C. (2015). Advance care planning and end-of-life decision making in dialysis: A randomized controlled trial targeting patients and their surrogates. American Journal of Kidney Diseases, 66(5), 813-22. PMID: 26141307; PMCID: PMC5972830

+Song, M.K., & Ward, S.E. (2015). Making visible a theory-guided advance care planning intervention. Journal of Nursing Scholarship. 47(5), 389-96. PMID: 26219616; PMCID: PMC Journal – In Process

+Song, M.K., & Ward, S.E. (2015). Assessment effects in educational and psychosocial intervention trials: An important but often-overlooked problem. Research in Nursing & Health, 38(3), 241-7. PMID: 25728502; PMCID: PMC4439294

Parvez, S, Abdel-Kader, K., Song, M.K., & Unruh, M. (2015). Conveying uncertainty in prognosis to patients with ESRD. Blood Purification. 39(1-3), 58-64. PMID: 25661575

*+Song, M.K., Ward, S.E., Bair, E., Weiner, L.J., Bridgman, J.C., Hladik, G.A., & Gilet, C.A. (2015). Patient-reported cognitive functioning and daily functioning in chronic dialysis patients. Hemodialysis International, 19(1), 90-9. PMID: 25110172; PMCID: PMC4294946 

+Song, M.K., & Ward, S.E. (2014). Decisions about dialysis and other life-sustaining treatments should not be made separately. American Journal of Kidney Disease, 64(5), 817-820. PMID: 25343998; PMCID: PMC Journal – In Process

*+Lutz, E.R., Costello, K.L., Jo, M., Gilet, C.A., Hawley, J.M., Bridgman, J.C., & Song, M.K. (2014). A systematic evaluation of websites offering information on chronic kidney disease. Nephrology Nursing Journal, 41(4), 355-363. PMID:25244890; PMCID: PMC4176705

*+Song, M.K., & Ward, S.E. (2014). Extent of informed decision-making about starting dialysis: Does patients’ age matter? Journal of Nephrology. 27(5), 571-576. PMID: 24519843; PMCID: PMC4130809

*+Song, M.K., Hanson, L.C., Jo, M., Gilet, C.A., Reed, T., & Hladik, G.A. (2014). Management of ethical issues related to care of seriously ill dialysis patients in free-standing facilities. Journal of Pain and Symptom Management, 48(3), 343-352. PMID: 24411183

DeVito Dabbs, A., Song, M.K., DeGeest, S., & Davidson, P.M. (2013). Promoting patient and caregiver engagement in self-management of chronic illness. Nursing Practice and Research. 180757. PMID: 2381334; PMCID: PMC3679773

*+Song, M.K., Lin, F-C., Gilet, C.A., Arnold, R.M., Bridgman, J.C., & Ward, S.E. (2013). Patients’ perspectives on informed decision-making surrounding dialysis initiation. Nephrology Dialysis Transplantation, 28(11), 2815-23. PMID: 23901048; PMCID: PMC3811056

*+Song, M.K., & Ward, S.E. (2013). Disconnect between emergency contacts and surrogate decision-makers in the absence of advance directives. Palliative Medicine, 27(8), 789-92. PMID: 233376786; PMCID: PMC5450815

DeVito Dabbs, A., Song, M.K., Myers, B., Hawkins, R.P., Aubrecht, J., Begey, A., Connolly, M., Li, R., Pilewski, J.M., Bermudez, C.A., & Dew, M.A. (2013). Clinical trials of health information technology interventions intended for patient use: Unique issues and considerations. Clinical Trials: Journal of the Society for Clinical Trials. 10(6), 896-906. PMID: 23867222; PMCID: PMC38084

+Song, M.K., Lin, F-C., Ward, S.E., & Fine, J.P. (2013). Composite variables: When and how. Nursing Research, 62(1), 45-9. PMID: 23114795; PMCID: PMC5450815

*DeVito Dabbs, A., Terhorst, L. Song, M.K., Shellmer, D.A., Aubrecht, J., Connolly, M., & Dew, M.A. (2013). Quality of recipient-caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation. Clinical Transplantation, 27(1), 113-20. PMID: 23004565; PMCID: PMC3530624

*Lindley, L.C., Mark, B., Lee, S-Y., Domino, M., Song, M.K., & Vann J.J. (2013). Institutional and resource factors associated with the provision of hospice care for children. Journal of Pain and Symptom Management, 45, 701-11. PMID: 22921174; PMCID: PMC3467095

*+Song, M.K., Ward, S.E., Lin, F-C., Hanson, L.C., Hladik, G.A., Hamilton, J., Bridgeman, J.C., & Miles, M.S. (2012). Psychological symptoms and end-of-life decision-making confidence of surrogates of dialysis patients. Journal of Nephrology Social Work, 37, 24-30. PMID: 25242897; PMCID: PMC4169048

*Cox, C.E., Lewis, C.L., Hanson, L.C., Hough, C.L., Kahn, J.M., White, D.B., Song, M.K., Tulsky, J., & Carson, S.S. (2012). Development and pilot testing of a decision aid for surrogates of patients with prolonged mechanical ventilation. Critical Care Medicine, 40(8), 2327-2334. PMID:22635048

*+Song, M.K., Ward, S.E., & Lin, F-C. (2012). End-of-life decision-making confidence in surrogates of African-American dialysis patients is overly optimistic. Journal of Palliative Medicine, 15(4), 412-17. PMID: 22468770; PMCID: PMC3322516

*Xu, J., Adeboyejo, O., Aubrecht, J., Song, M.K., Thiry, L., & DeVito Dabbs, A. (2012). Daily burdens of recipients and family caregivers after lung transplantation. Progress in Transplantation, 22(1), 41-47. PMID: 22489442; PMCID: PMC3331720

*Cipkala-Gaffin, J., Talbott, E., Song, M.K., Bromberger, J., & Wilson, J. (2012). Associations among depressive symptoms, anxiety, anger, hostility, and satisfaction with life in women with polycystic ovary syndrome. Journal of Women’s Health, 21(2), 179-87. PMID: 22004245

DeVito Dabbs, A., Song, M.K., Hawkins, R., Aubrecht, J., Kovach, K., Terhorse, L., & Callen, J. (2011). An intervention fidelity framework for technology-based behavioral interventions. Nursing Research, 60(5), 340-347. PMID 21879786; PMC3164967

*+Song, M.K., Gillet, C., Lin, F., MacHardy, N., Stalberg, K., DeVito Dabbs, A.J., Fine, J.P., & Fuller, E. (2011). Characterizing daily life experience of maintenance dialysis patients. Nephrology Dialysis Transplantation, 26, 3671-3677. PMID: 21382996; PMCID: PMC3247795

*+Shields, A.M., Park, M., Ward, S.E., & Song, M.K. (2010). Recruitment and retention against quadruple challenges in a clinical trial of end-of-life communication intervention. Journal of Hospice & Palliative Nursing, 12(5), 312-318. PMID: 20936087; PMCID: PMC2950605

*+Song, M.K., DeVito Dabbs, A., Studer, S.M., Arnold, R.M., & Pilewski, J. (2010). Exploring the meaning of chronic rejection after lung transplantation and its impact on clinical management and caregiving. Journal of Pain and Symptom Management, 40(2), 246-255. PMID: 20541897

*Lindell, K.O., Olshansky, E., Song, M.K., Zullo, T.G., Gibson, K.F., Kaminski, N., & Hoffman, L.A. (2010). Impact of a disease management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners. Heart & Lung, 39(4), 304-313. PMID20561836

*+Song, M.K., Donovan, H.S., Piraino, B., Choi, J., Bernardini, J., Verosky, D., & Ward, S.E. (2010). Effects of an intervention to improve communication about end-of-life among African Americans with chronic kidney disease: A pilot study. Applied Nursing Research, 23, 65-72. PMID: 20420992

*+Song, M.K., Happ, M.B., & Sandelowski, M. (2010). Development of a tool to assess fidelity to a psycho-educational intervention. Journal of Advanced Nursing, 66, 673-682. PMID: 20423402; PMCID: PMC2861796

*+Song, M.K., & Hanson, L.C. (2009). Relationships between psychosocial-spiritual well-being and end-of-life preferences and values in African-American dialysis patients. Journal of Pain and Symptom Management, 38, 372-380. PMID: 19356896; PMCID: PMC2847486

*+Song, M.K., Ward, S.E., Happ, M.B., Piraino, B., Donovan, H.S. Shields, A-M., & Connolly, M.C. (2009). Randomized controlled trial of SPIRIT: An effective approach to prepare African-American dialysis patients and families for end of life. Research in Nursing & Health, 32, 260-273. PMID: 19205027; PMCID: PMC2719959

*+Song, M.K., DeVito Dabbs, A.J., Studer, S.M., & Arnold, R.M. (2009). Palliative care referrals after lung transplantation in major lung transplant centers. Critical Care Medicine, 37, 1288-1292. PMID: 19242344

Lingler, J.H., Sherwood, P.R., Crighton, M.C., Song, M.K., & Happ, M.B. (2008). Conceptual challenges in the study of caregiver-care recipient relationships. Nursing Research, 57, 367-372. PMID: 18794721

*+Song, M.K., DeVito Dabbs, A., Studer, S.M., & Zangle, S.E. (2008). The course of illness after the onset of chronic rejection in lung transplant recipients. American Journal of Critical Care, 17, 246-253. PMID: 18450681

DeVito Dabbs, A.J., & Song, M.K. (2008). Risk profile for cardiovascular morbidity and mortality after lung transplant. Nursing Clinics of North America, 43, 37-53. PMID: 18249224

Donovan, H.S., Ward, S.E., Song, M.K., Heidrich, S.M., Gunnarsdottir, S., & Phillips, C.M. (2007). The representational approach to patient education: An update and review of the empirical research. Journal of Nursing Scholarship, 39, 259-265. PMID: 17760800

*+Song, M.K., & DeVito Dabbs, A.J. (2006). Advance care planning after lung transplantation: A case of missed opportunities. Progress in Transplantation, 16, 222-225. PMID: 17007156

*+Song, M.K., & Sereika, S.M. (2006). An evaluation of the decisional conflict scale for measuring the quality of end-of-life decision making. Patient Education & Counseling, 61, 397-404. PMID: 15970420

*+Song, M.K., Kirchfoff, K.T., Douglas, J., Ward, S.E., & Hammes, B.J. (2005). A randomized, controlled trial to improve advance care planning among patients undergoing cardiac surgery. Medical Care, 43, 1049-1053. PMID: 16166875

*Oakley, L.D., Song, M.K., & Debose-McQurter, M. (2005). Positive and negative depression coping in low income African American women. Research in Nursing & Health, 28, 106-116. PMID: 15779059

*Briggs, L.A., Kirchhoff, K.T., Hammes, B.J., Song, M.K., & Colvin, E. (2004). Patient-centered advance care planning in special patient population: A pilot study. Journal of Professional Nursing, 20(1), 47-58. PMID: 15011193

+Song, M.K. (2004). Effects of end-of-life discussions on patients’ affective outcomes. Nursing Outlook, 52, 118-125. PMID: 15197360

Kirchhoff, K.T., Song, M.K., & Kehl, K. (2004). Caring for the family of the critically ill patient. Critical Care Clinics of North America, 20, 453-466. PMID: 15183213

*Kim, H., & Song, M.K. (2001). A study on the use of sedatives, analgesics, & muscle relaxant for mechanically ventilated patients. Korean Journal of Aerospace and Environmental Medicine, 11(2), 114-120.

*+Song, M.K., & Choi, E. (1999).  Factors affecting pre-hospital delay time in patients with acute myocardial infarction. Journal of Korean Academy of Nursing, 14, 335-340.

*Kim, H., & Song, M.K. (1998). Comparison of rectal temperature and tympanic membrane temperature in ICU patients. Nursing Science, 10(2), 22-30.

+Gustafson, C., Cimiotti, J.R., Gerard, V., Heertzberg, V.S., Song, M.K. Age Ranges in Young Adult Chronic Illness Studies: A Narrative Review. Western Journal of Nursing Research.

*+Henry, C., Dunlop, A., Paul, S., Kelly, U.A., Christiansen-Lindquist, Chandler, R., Song, M.K. Similarities and differences in characteristics of Black women recruited by mail vs. social media after stillbirth, Journal of Obstetric, Gynecologic, and Neonatal Nursing.

*+Song, M.K., Manatunga, A., Plantinga, L., Metzger, M., Kshirsagar, A., Abdel-Rahman, E., Lea, J., Wu, E., Englert, J., Jhamb, M., & Ward, S.E. An advance care planning intervention targeting patients on dialysis and their surrogate decision-makers: The SPIRIT pragmatic cluster randomized trial. JAMA Internal Medicine.

Book Chapter

DeVito Dabbs, A., Song, M.K., & Switzer, S.D. (2011). Integrative therapies for lung transplantation Recipients. In L. Chlan & M.I. Hertz (Eds), Integrative therapies in lung health and sleep (pp. 145-154). New York, NY: Springer.

Song, M.K., Sandelowski, M., & Happ, M.B. (2010). Current practices and emerging trends in conducting mixed methods intervention studies. In A. Tashakkori & C. Teddlie (Eds), Handbook of mixed methods in social & behavioral research (2nd ed., pp. 725-747). Thousand Oak, CA: Sage.

+Henry, C., & Song M.K. (2023). Use of the strong black woman construct in research: An integrative review. ANS: Advances in Nursing Science.

*+Noorani, N., Ward, S.E., Metzger, M., Benloukil, S., Laszlo, M., & Song, M.K. (2023). Scheduling advance care planning (ACP) interventions with dyads of patients on dialysis and their surrogates. Journal of Pain and Symptom Management, 65(5), e668-e669.

*+Song, M.K., Paul, S., & Happ, M.B. (2022). Informal caregiving networks for persons with dementia superimposed on complex multimorbidity, Innovation in Aging, 6(Suppl 1), 554-555.

Hepburn, K., Waldrop, D., Song, M.K., Clevenger, C.K., Aflatoony, L., … Perkins, M. (2022). Alzheimer’s & Dementia, 18, e065582.

*Park, E.M., Deal, A.M., Heiling, H.M., Jung, A., Yopp, J.M., Bowers, S.M., Hanson, L.C., Song, M.K., Valle, C.G., Yi, B., Cassidy, A., Won, H., Rosenstein, D.L. (2022). Families addressing cancer together (FACT): Feasibility and acceptability of a web-based psychosocial intervention for parents with cancer. Supportive Care in Cancer, 30(10), 8301-8311.

 +Henry, C., Higgins, M., Carlson, N., & Song, M.K. (2021). Racial disparities in stillbirth risk factors among non-Hispanic Black women and non-Hispanic white women in the U.S., MCN: The American Journal of Maternal Child Nursing, 46(6), 352.

*+Gustafson, C., Henry, C., & Song, M.K. (2021). End-of-life preferences of persons with mild to moderate dementia. Journal of Pain and Symptom Management, 61(3), 689.

White, D.B., Arnold, RM., Seamnan, J.B., ….. Song, M.K., …, Angus, D.C. (2020). Multicenter randomized trial of the four supports intervention for surrogate decision makers in ICUs. American Thoracic Society, A1030.

*Lincoln, T.E., Shields, A.M., Patty, K., …, Song, M.K., …, White, D.B. (2020). Physicians’ and family members’ perception of a family support intervention in intensive care units. American Thoracic Society, A2811.

Hepburn, K., Perkins, M., Waldrop, L., Aflatoony, L., Song, M.K., & Clevenger, C. (2020). Emory Roybal Center for dementia caregiving mastery: Diverse responses to letter of intent call. Innovation in Aging, 4(Supple 1), 384.

*+Kim, H., Perkins, M., Pope, T., Comer, P., & Song, M.K. (2020). Nursing home staff’s perceptions of healthcare decision making for unbefriended residents. Innovation in Aging, 4(Supple 1), 384.

*+Park, E.M., Deal, A.M., Hanson, L.C., Rosenstein, D.L., Quillen, L.J., Hailey, C.E., Chien, S.A., Sanoff, H.K., Carey, L.A., & Song, M.K. (2019). A Comparison of Treatment Preferences, Decision-making, and Psychosocial Outcomes in Advanced Cancer Patients with and without Minor Children: A Matched Cohort Study, ASCO (refereed).

*+Henry, C., Gustafson, C., Paul, L., Plantinga, L., Turbeville-Trujillo, L., Ojeniyi, T., Song, M.K. (2019). Social networks of self-management and care coordination among patients on hemodialysis. American Journal of Kidney Diseases, 73(5), 680.

*+Spero, H., Kim, H., Song, M.K. (2019). Comparison of State POLST Forms: Scope of life-sustaining treatment. Journal of Pain and Symptom Management, 57(2), 518-519.

*+Henry, C., Kim, H., Park, E., Ward, S.E., & Song, M.K. (2019). Control groups in RCTs of psychoeducational palliative care intervention: A systematic review. Journal of Pain and Symptom Management, 57(2), 497-498.

*Kovaleva, M.A., Higgins, M., Jennings, B.M., Song, M.K., … Hepburn, K. (2019). The integrated memory care clinic as a healthcare network. Innovation in Aging, 3(Suppl 1), S559.

*Kovaleva, M.A., Higgins, M., Jennings, B.M., Song, M.K., … Hepburn, K. (2019). Predictors of changes in wellb-eing among the integrated memory clinic clients. Innovation in Aging, 3(Suppl 1), S559.

*Kovaleva, M.A., Higgins, M., Jennings, B.M., Song, M.K., … Hepburn, K. (2019). Nurse-led dementia medical home: What is it like for clients?. Innovation in Aging, 3(Suppl 1), S116.

*+Song, M.K., Ward, S., Hepburn, K., Paul, S., Kim, H., Morhardt, D., & Shah, R.C. (2019). Can persons with dementia meaningfully participate in advance care planning conversations? A mixed-methods study. Innovation in Aging, 3(Suppl 1), S53-S54.

*+Park, E.M., Deal, A.M., Rosenstein, D.L., Hailey, C.E., Schille, C.D., Chien, S.A., Song, M.K. (2018). The influence of parental status on treatment preferences, advance care planning, and health-related quality of life among adults with metastatic cancer. Journal of Pain and Symptom Management, 55(2), 608.

*Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2017). Goals of care and the dying experience in advanced dementia: What might be learned by implementing goals of care. Journal of Pain and Symptom Management, 53(2), 416.

*Alrawashdeh, M., DeVito Dabbs, A., Dew, M.A., Song, M.K., Zomak, R., Pilewski, J., Bermudez, C. (2015). Predictors of discharge destination after lung transplantation. The Journal of Heart and Lung Transplantation, 34(4), S73.

*+Song, M.K., Ward, S.E., Bridgman, J.C., Gilet, C.A., & Hladik, G.A. (2014). Depressive symptoms and self-management among chronic dialysis patients. Journal of American Society of Nephrology.

*+Metzger, M., Song, M.K., Ward, S.E. (2015). Events preceding final hospitalizations or deaths and end-of-life decision in patients on chronic dialysis. Journal of Pain and Symptom Management, 49(2), 442-443.

*DeVito Dabbs, A, Dew, M.A., Myers, B.A., Song, M.K., Li, R., Zomak, R., Pilewski, J., & Bermudez, C.A. (2014). Randomized controlled trial of Pocket PATH®, an mHealth intervention to promote self-management after lung transplantation. American Journal of Respiratory & Critical Care Medicine,189, A5361.

*+Song, M.K., Ward, S.E., Bair, E., Weiner, L.J., Bridgman, J.C., Hladik, G.A., & Gilet, C.A. (2014). Relationships of objective and subjective cognitive impairment to daily functioning among maintenance dialysis patients. Palliative Medicine. 28(6), 818-819.

*+Song, M.K., Arnold, R.M., & Gilet, C.A. (2012). Physicians’ communication during decision making to start dialysis: Patients’ perspectives. Journal of American Society of Nephrology, 23, 51A-52A.

*+Song, M.K., Gillet, C., Lin, F., MacHardy, N., DeVito Dabbs, A., Fine, J.P., Stalberg, K., & Fuller, E. (2011). Assessing daily illness burden of patients with ESRD. Advances in Chronic Kidney Disease. 18(2), 154.

*DeVito Dabbs, A., Dew, M.A., Terhorst, L., Song, M.K., et al. (2011). Self-care agency and its predictors among lung transplant recipients. The Journal of Heart and Lung Transplantation, 30(4), S165.

*Cipkala-Gaffin, J., Talbott, E., Song, M.K., Bromberger, J., & Wilson, J. (2010). Associations among depressive symptoms, anxiety, anger, hostility and satisfaction with life in women with polycystic ovary disease (PCOS). Journal of Women’s Health, 18(5), 747.

*+Song, M.K., De Vito Dabbs, A., Studer, S.M., & Arnold, R.M. (2009). Palliative care referrals after lung transplantation in major transplant centers in the U.S. The Journal of Heart and Lung Transplantation, 28(2S), 268-269.

*Cipkala-Gaffin, J.A., Talbott, E.O., Barinas-Mitchell, E., Song, M.K., Brown, C., Wilson, J. (2009). Psychological factors and intima-media thickness in polycystic ovary syndrome. American Journal of Epidemiology, 169, S68.

*+Song, MK., DeVito Dabbs, A. (2008). Ethical considerations of institutionalized death after lung transplant. American Journal of Respiratory & Critical Care Medicine, 177, 7, A841.

*Gallek, M.J., Song, M.K., Sherwood, P.R., et al. (2007). The use of a cognitive functional index following aneurismal subarachnoid hemorrhage. Critical Care Medicine, 35(12), A167.

*DeVito Dabbs, A., Johnson, B.A., Dew, M.A., Song, M.K., & Studer, S.M. (2007). Evaluation and dissemination of the electronic version of the questionnaire for lung transplant patients (e-QLTP). The Journal of Heart and Lung Transplantation, 26 (2), S161-S162.

*+Song, M.K., DeVito Dabbs, A., Studer, S., Zangle, S. (2007). Clinical course and health care utilization after chronic lung rejection. American Journal of Respiratory & Critical Care Medicine, 5, A520.

*+Song, M.K., DeVito Dabbs, A., Studer, S., Choi, J., Kruise, M., & O’Connell, K. (2006). Describing the illness trajectory after the onset of chronic lung rejection: A preliminary study. American Journal of Respiratory & Critical Care Medicine, 3, A369.

Teaching

Dr. Song has taught nursing ethics at all levels, including a doctoral seminar, Ethics and Law in Healthcare and Research, instrumentation and measurement, theory-based intervention development and testing.

Dr. Song is a Co-Director of a T32 Research Training on Improving Outcomes in Chronic Conditions funded by the National Institute of Nursing Research.

Research

CareNet, An Interactive Digital Tool to Assess Informal Caregiving Networks of Older Adults with Dementia (Song, M.K. & DeVito Dabbs, A.)
Principal Investigator
NIH/NIA, R56AG083167
Total costs: $1.4M
Funding period: September 2023-August 2025

Investigating Informal Caregivers’ Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver Outcomes (Perkins, M.)
Co-investigator
NIH/NIA, R01AG069114
Total costs: $3.8M
Funding period: 6/1/2021-5/31/2024

Impact of the COVID-19 Pandemic on End-of-Life Decision Making among Patients with Complex Multimorbidity (Song, M.K.)
Principal Investigator
NIH/3R01NR017018-04S1
Total costs: $250,000
Funding period: 8/13/2020-3/31/2024 (NCE)

Roybal Translational Research Center to Promote Context-Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders (Hepburn, K. & Perkins, M.)
Co-investigator
NIH/NIA, 1P30AG066200
Total costs: $3.3M
Funding period: 9/2019-8/31/2024

SPIRIT, an Advance Care Planning Intervention, for Persons with Dementia and Complex Multimorbidity (Song, M.K.)
Principal Investigator
NIH/NIA, 3R01NR017018-03S1
Total costs: $390,000
Funding period:08/01/2019-03/31/2020 (03/31/2024

Preparation for End-of-Life Decision Making in Mild Alzheimer’s Disease (Song, M.K.)
Principal Investigator
NIH/NIA, R01AG057714
Total costs: $3M
Funding period: 09/30/2017-04/30/2024 (NCE)                                                                                                                                        

An Effectiveness-Implementation Trial of SPIRIT in ESRD (Song, M.K.)
Principal Investigator
NIH/NINR, R01NR017018
Total costs: $3.4M
Funding period: 06/01/2017-03/31/2024 (NCE)

For details about her NIH-funded research projects: NIH RePORTER

Awards

2019 Distinguished Researcher Award, Southern Nursing Research Society

2018 International Nurse Researcher Hall of Fame, Sigma Theta Tau International Nursing Honor Society